The Housing Dilemma for Adults with Autism
It’s no surprise that there’s a massive housing dilemma for adults with autism and others with intellectual developmental disabilities. These individuals require care, attention, and comfortable living accommodation to allow them to live their lives to the absolute fullest. This housing crisis continues to develop and grow over the years, with not much in the way of solutions – until now.
Here at Neuro Diverse Living, we’re providing a workable future for safe, lifelong living and scalable housing options for those with autism spectrum disorder (ASD) and other intellectual and developmental disabilities (IDD). Before reviewing our approach to the solution, it’s essential to address the challenges that exist across the United States.
The Numbers Continue to Increase
Being a parent of an adult with ASD or other IDDs is challenging and fraught with isolation, frustration, fear, and exhaustion. That’s true for both the individual with ASD/IDD and the parents who care for them. Every 11 minutes, someone is diagnosed with autism in the US. Almost 6.5 million people in the US, or 3 per cent of the total population, have IDD. And every year, that population of adults with ASD grows by 50,000.
The problem lies in the availability of practical housing alternatives for individuals with ASD/IDD as they transition from adolescence to adulthood and ultimately to senior citizens. While symptoms of autism can change over time, and the individual may learn to manage their symptoms, there is no cure for individuals with ASD/IDD, and they do not typically outgrow the disorder. That means that many are challenged to get jobs, learn independent skills such as finances, cooking, and effectively managing personal hygiene for the duration of their lives. While some may live independently, most individuals with ASD/IDD require some level of ongoing supervision and care. A US study found that only 17 per cent of adults with autism between 21 and 25 have lived independently.
Unfortunately, while there are institutions licensed to care for people showing severe signs of ASD/IDD, many families either can’t afford the ongoing cost or can’t bear the thought of surrendering their child to facilities like these. Also, many adults with ASD/IDD don’t require such a high level of care. So many families choose to keep their child at home well into adult life. Eventually, the parent dies or becomes incapable of adequately caring for their grown child without a housing or transition plan. When this happens, the adult child loses everything they know — their parent/caregiver, home, and entire life. A CDC report in May 2020 states “that without access to affordable housing in their community or the support to live in their own home, adults with autism are at risk of homelessness or displacement from their community. They may be placed in the next empty bed of a group home or adult foster care that could be hundreds of miles away from their hometown.”
Desiree Kameka, Director of the Autism Housing Network, stated: “We know from the contacts made through our website that there is a large percentage of autistic adults already experiencing homelessness. Due to social and communication impairments, many can’t get past an in-person job interview, and thus they can’t afford housing. They experience a crisis when their parents pass away as they find themselves without support with the upkeep of everyday life. They often fall victim to mate-crime or predatory/abusive relationships.”
Government Provides Services Not Solutions
Autism is said to be the largest developmental and intellectually challenged special needs group. It is estimated that by 2025, at least 500,000 children with autism will become adults with autism. Current service systems in the US aren’t adequate to address the needs of this emerging population. It also means that half a million families will need to navigate the residential care network in hopes of finding their adult child adequate housing – 87 per cent of the population with autism live in the family home, and 35 per cent require 24-hour support.
What happens when the parents are no longer able to care for their child? The reality is that these families have very few practical choices.
Schools are mandated to try meeting the needs of children with autism until the age of 22. However, after they pass that threshold, the responsibility falls on the parents to figure out how to provide services for their child, leaving them with few resources.
To accommodate adults with autism or other intellectual disabilities, there is a dire need for new housing models that don’t require institutionalization but may require some level of continuous supervision and case management.
The Neuro Diverse Living Difference
Neuro Diverse Living (NDL) is a new and exciting 501C3 nonprofit organization designed to provide adults living with autism or other IDDs with independent housing alternatives based on their support needs. This specialized housing creates an environment where they can thrive and become members of their local community. Our goal is to provide this underserved population safe and sustainable options for neuro inclusive housing with the same opportunities in life as their neurotypical peers.
Children typically outlive their parents, and that’s the same for children with autism. Our neuro-inclusive communities will offer families a sense of comfort, knowing that their special-needs child will have a permanent and safe place to live indefinitely. Serving as a lifelong advocate for their child will be a game-changer for these parents and for the adult children they love so much.
What Does NDL Need to Succeed?
Neuro Diverse Living (NDL) is in its infancy stages, ready to blossom into a fully-fledged community for adults with autism or other intellectual developmental disabilities. We’re looking not only for scattered-site single-family, duplex, or small apartment structures across Pennsylvania in need of light renovation but the property on which to build new, neuro-inclusive cohousing communities.
Corporate sponsors can help us with the funds necessary to buy and develop the property, fund inspections, make renovations to create unique supportive housing solutions by combining smart-home technology, intentional sensory-friendly design strategies, and built-in supports. Because we’re a tax-exempt charity, donors who have property or structures they no longer need can receive substantial tax-deductions by donating it to us for this critical charitable use. We also accept gifts of stock. When you make a gift of stock, you can claim a charitable deduction equal to the value of the stock on the day of your gift and avoid capital gains taxes you might pay if you sold it. That’s a win-win in our book.
As NDL moves forward with plans for building our neuro-inclusive cohousing communities, we are also looking for people who not only may want naming rights but understand the need for long-term funding and would consider putting NDL in their will and estate plan. In that way, we can guarantee safe and secure lifelong living arrangements for individuals with ASD/IDD as they transition into adulthood.
For more information on all of these options and the Champions of Hope program, please contact NDL at [email protected]
G7 Summit guide: What it is and what leaders hope to achieve
Unless you’ve had your head buried in the sand, you’ll have seen the term ‘G7’ plastered all over the Internet this week. We’re going to give you the skinny on exactly what the G7 is and what its purpose on this planet is ─ and whether it’s a good or a bad collaboration.
Who are the G7?
The Group of Seven, or ‘G7’, may sound like a collective of pirate lords from a certain Disney smash-hit, but in reality, it’s a group of the world’s seven largest “advanced” economies ─ the powerhouses of the world, if you like.
The merry band comprises:
- The United Kingdom
- The United States
Historically, Russia was a member of the then-called ‘G8’ but found itself excluded after their ever-so-slightly illegal takeover of Crimea back in 2014.
Since 1977, the European Union has also been involved in some capacity with the G7 Summit. The Union is not recognised as an official member, but gradually, as with all Europe-linked affairs, the Union has integrated itself into the conversation and is now included in all political discussions on the annual summit agenda.
When was the ‘G’ formed?
Back in 1975, when the world was reeling from its very first oil shock and the subsequent financial fallout that came with it, the heads of state and government from six of the leading industrial countries had a face-to-face meeting at the Chateau de Rambouillet to discuss the global economy, its trajectory, and what they could do to address the economic turmoil that reared its ugly head throughout the 70s.
Why does the G7 exist?
At this very first summit ─ the ‘G6’ summit ─, the leaders adopted a 15-point communiqué, the Declaration of Rambouillet, and agreed to continuously meet once a year moving forward to address the problems of the day, with a rotating Presidency. One year later, Canada was welcomed into the fold, and the ‘G6’ became seven and has remained so ever since ─ Russia’s inclusion and exclusion not counted.
The group, as previously mentioned, was born in the looming shadow of a financial crisis, but its purpose is more significant than just economics. When leaders from the group meet, they discuss and exchange ideas on a broad range of issues, including injustice around the world, geopolitical matters, security, and sustainability.
It’s worth noting that, while the G7 may be made up of mighty nations, the bloc is an informal one. So, although it is considered an important annual event, declarations made during the summit are not legally binding. That said, they are still very influential and worth taking note of because it indicates the ambitions and outlines the initiatives of these particularly prominent leading nations.
Where is the 2021 G7 summit?
This year, the summit will be held in the United Kingdom deep in the southwest of England, with Prime Minister Boris Johnson hosting his contemporaries in the quaint Cornish resort of Carbis Bay near St Ives in Cornwall.
What will be discussed this year?
After almost two years of remote communication, this will be the first in-person G7 summit since the novel Coronavirus first took hold of the globe, and Britain wants “leaders to seize the opportunity to build back better from coronavirus, uniting to make the future fairer, greener, and more prosperous.”
The three-day summit, running from Friday to Sunday, will see the seven leaders discussing a whole host of shared challenges, ranging from the pandemic and vaccine development and distribution to the ongoing global fight against climate change through the implementation of sustainable norms and values.
According to the UK government, the attendees will also be taking a look at “ensuring that people everywhere can benefit from open trade, technological change, and scientific discovery.”